Getting their child back from a ‘deep hole’

After Makena suffered 100 seizures, surgery became a ‘high point’ for these parents

It started off as just one seizure in December 2014, when Makena was only 15 months old. At that time, doctors assured her parents, Mike and Annalisa Whittle, that febrile seizures like the one their daughter experienced were not uncommon.

Then, one year later, Makena had another seizure. She was prescribed medication.

Then, another one came 10 months later. The seizures started coming with more regularity — a month apart, a week apart, then every day — until one day, she had suffered from 100 seizures while at the pediatric intensive care unit at BC Children’s.

By then, it felt like everything had fallen apart.

“How did it get to this?” asked Annalisa. “One day, we were watching Makena at dance class. And then — boom. In a bed. Can’t breath or talk.”

Makena was one of a small group of kids whose seizures can’t be controlled by medication. Specialists at the hospital determined that surgery was needed to stop the seizures.

“On any other day, that would have been the worst news we could have received,” said Mike. “But the hole was so deep at that point that the idea of surgery became a high point for us.”

It took two surgeries and the decision to remove Makena’s motor strip from the right frontal lobe of her brain to finally stop the seizures — but it came at a cost. Before going into the second surgery, Annalisa and Mike knew that Makena would come out of it with her left side paralyzed.

It was a decision they were willing to make in order to give their daughter the best chance possible.

And it did just that for her. Much to everyone’s surprise, about a month after starting rehabilitation at BC Children’s Sunny Hill Health Centre for Children, Makena started to walk again. She also re-gained the ability to use her left hand and the left side of her body.

Annalisa and Mike credit BC Children’s for saving their daughter.

“You’re handing your child to people you just met, but whom you trust because they’re the best at what they do,” said Mike. “And you just have to hold onto that as tight as you can.”

Makena and her family spent the seven worst weeks of their life at BC Children’s during December 2016 and January 2017 — which included the holiday season.

And she’s not the only one. Each year, kids from across B.C. spend their holidays at BC Children’s. They hold onto hope that one day, they can spend their holidays at home, with their families, perhaps enjoying a snowball fight outside or one of their other favourite activities.

The second annual Snowball Fight for Kids Campaign at BC Children’s Hospital Foundation is back — and its goal is to help these kids get back to being kids.

From Nov. 19 through Jan. 6, online donations can be made at snowballfightforkids.ca to help fund vital equipment, life-saving research, and the highest level of care for kids like Makena across the province.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

 

Comments are closed

Just Posted

Nearly 20 individuals accessed LRCA’s cold weather shelter during 2020 snowstorm

Most individuals accessed the shelter for food, showers, laundry, and to warm up

Shoot the Moon pub passes public hearing stage

Rod Alsop and Jon Ludtke’s proposed pub is one step closer after a packed public hearing

Nanaimo-Ladysmith MP visits Wet’suwet’en camps, calls for Coastal GasLink pipeline to be ‘revisited’

Paul Manly met with Wet’suwet’en hereditary chiefs and the RCMP to talk about the ongoing situation

BREAKING: LSS evacuated after reports of ‘gas smell’

Students were evacuated to Frank Jameson Community Centre, but have since returned to class

Successful end to search for kayakers along the Chemainus River

Father and son located tired and cold, but otherwise OK

Officials reaching out to those in contact with Canada’s first coronavirus patient

The illness has sickened at least 1,975 people and killed 56 in China

‘Devastated’: Fans, celebrities remember Kobe Bryant after his death

Bryant played all of his 20-year career with the NBA with the Los Angeles Lakers

Investigation launched after six dead puppies dumped in Richmond hotel parking lot

RAPS reminds people they can always give up puppies they can’t take care of

Canadian Lunar New Year celebrations dampened by coronavirus worries

But Health Minister Patty Hajdu said today that the risk of infection is low

B.C. VIEWS: New coronavirus outbreak an important reminder

Walking the line between cautious and alarmist

Kobe Bryant, daughter killed in California helicopter crash

Bryant entered the NBA draft straight out of high school in 1996

Risk of coronavirus low in B.C. as first case emerges in Toronto: officials

There have been no confirmed cases of the virus in B.C.

‘Presumptive case’ of coronavirus in Canada confirmed by Ontario doctors

Man in his 50s felt ill on his return to Canada from Wuhan, China

Most Read